Me pehea taku aro atu ki te MS Tuatahi o te MS

Ahakoa e maarama ana koe he aha te PPMS me ona paanga ki to tinana, tera pea ka tae mai etahi wa ka noho mokemoke koe, noho wehe, ana pea ka tino porearea koe. Ahakoa he uaua tenei tu ahua ki te korero iti, he tikanga noa enei kare a roto.

Mai i nga whakarereketanga maimoatanga tae atu ki nga whakarereketanga o te noho, ka ki to koiora i nga whakarereketanga. Engari ehara i te mea me whakatika e koe te tangata takitahi.

Ano hoki, ma te rapu pehea etahi atu penei i a koe me te whakahaere i te ahuatanga ka awhina koe kia pai ake to tautoko i to haerenga PPMS. Panuihia enei korero korero mai i to taatau Noho me te hapori Facebook maha o Sclerosis ka kite he aha taau e taea ai ki te aro atu ki te PPMS.

“Haere tonu ki mua. (Maama ake, E mohio ana au!) Kaore te nuinga o te iwi i te mohio. Kaore o raatau MS. ”
– Janice Robson Anspach, e noho ana me MS

"Pono, ko te whakaae te ki ki te aro atu - {panui} me te whakawhirinaki ki te whakapono me te whakatinana i te mauritau me te whakaaro mo anamata e taea ai te whakaora. Kaua e hoatu. "
– Todd Castner, e noho ana me MS

“Ko etahi ra he uaua ake i etahi atu! He ra kua ngaro noa ahau kei te hiahia ranei ahau ki te tuku ka mutu katoa! I etahi ra ka kaha ake te mamae, te pouri, te moe ranei. Kaore au e pai ki te tango meds. I etahi wa ka hiahia ahau ki te whakamutu i te tango katoa. Katahi ka maumahara au ki te take e whawhai ana ahau, te take ka akiaki au ka haere tonu. ”
– Crystal Vickrey, e noho ana me MS

“Me korero tonu ki tetahi mo to ahuatanga. Ma tenei anake e awhina. ”
– Jeanette Carnot-Iuzzolino, e noho ana me MS

"Ia ra ka oho ahau ka whakatau i nga whainga hou ka poipoia ia ra, ahakoa e mamae ana au, e ahua pai ana ranei."
– Ko Cathy Sue, e noho ana me MS