Pūrere Tautoko Nekehanga mo te Tuarua MS Whakamua: He Tuuturu, Taputapu Heke, me etahi atu

Toka Te Manawa

• Whawhai kua whakaritea
• Taonga whakaoho hiko hiko mahi
• Tohu, tokotoko, hikoi ranei
• TuuruWiira, i te kuta ranei
• Te tangohanga

Tirohanga

Ko te sclerosis tuuturu tuarua tuarua (SPMS) he maha nga tohumate, tae atu ki te koretake, te ngenge, te ngoikore o te uaua, te uaua o te uaua, me te ngaro o te kare a roto o o peka.

Ka haere te waa, ko enei tohu ka pa ki to kaha ki te hikoi. E ai ki te National Multiple Sclerosis Society (NMSS), 80 paiheneti o nga taangata he MS he wero kei te haere i roto i te 10 ki te 15 tau te whanake i te mate. He maha o raatau ka whai hua ma te whakamahi i tetahi taputapu tautoko nekeneke, penei i te kakaho, i te hikoi, i te tuuru wira ranei.

Akene kua tae ki te waa ki te whakaaro ki te whakamahi i tetahi taputapu tautoko nekeneke mena i:

• mana'o kore tu i runga i o waewae
• ka ngaro to pauna, ka he, ka hinga pinepine ranei
• e uaua ana ki te whakahaere i nga nekehanga ki o waewae, waewae ranei
• tino ngenge i muri i te tu, i te hikoi ranei
• te karo i etahi mahi na nga wero nekehanga

Ma te taputapu awhina nekehanga e aarai te hinga, te tiaki i to kaha, me te whakanui ake i to taumata mahi. Ma tenei e pai ai to hauora me te kounga o te koiora.

Mahia he wa poto ki te ako mo etahi o nga taputapu tautoko nekeneke ka awhina pea koe ki te noho waea me SPMS.

Whawhai kua whakaritea

Mena kua whakawhanakehia e koe te ngoikore, te pararutiki ranei i nga uaua e hiki ai to waewae, ka taea e koe te whakawhanake i tetahi ahuatanga e mohiotia ana ko te taka o te waewae. Ma tenei ka ngoikore to waewae ka toia ranei ka haere koe.

Hei awhina i to waewae, ka tohu pea to taakuta, to kaiwhakawai whakaora ranei i tetahi momo piripiri e mohiotia ana ko te waewae-waewae orthosis (AFO). Ma tenei kaitautoko e awhina te pupuri o to waewae me to waewae o te waewae i roto i te tuunga tika i a koe e hikoi ana, ma tera pea e aukati i te tutukitanga me te hingatanga.

I etahi wa, ka akiaki to taakuta, te kaiwhakawai whakaora ranei ki a koe ki te whakamahi i te AFO me etahi atu taputapu tautoko nekeneke. Mena ka whakamahia e koe he tuuru wira, hei tauira, ka taea e te AFO te awhina i to waewae ki runga i te turanga waewae.

Taonga whakaoho hiko hiko mahi

Mena kua whanaketia e koe te maturuturu waewae, ka tohu pea to taakuta, o te kaiwhakawai whakaora ranei ki a koe kia whakamatauhia te whakaoho hiko hiko (FES).

I tenei huarahi maimoatanga, he taputapu taumaha e piri ana ki to waewae i raro iho o to turi. Ka tukuna e te taputapu nga hiko hiko ki to nerve peroneal, ka whakahohe i nga uaua ki to waewae me to waewae. Ma tenei pea e pai ake ai to haere, ma te whakaiti i to tupuhi ka hinga koe.

Ka mahi noa te FES mena kei te pai nga io me nga uaua i raro iho o to turi ki te whiwhi ki te whakautu i nga hiko hiko. Ka haere te waa, ka ngoikore pea te ahua o o uaua me nga io.

Ka awhina to taakuta, to kaiwhakawai whakaora ranei ki a koe ki te ako mena ka awhina mai a FES ki a koe.

Tohu, tokotoko, hikoi ranei

Mena ka paku ngoikore o waewae, ka pai koe ki te whakamahi i te tokotoko, i te tokotoko, i te hikoi ranei hei awhina. Me pai to ringa me to ringaringa ki te whakamahi i enei taputapu.

Ka tika ana te whakamahi, ma enei taputapu e awhina te whakapai ake o to taurite me te pumau me te whakaiti i to tupono ka hinga koe. Mena kaore i te whakamahia tika, ma raatau pea e tupono ka hinga koe. Mena kaore i te pai te whakauru, ka taea e raatau te awhina ki te tuara, ki te pakihiwi, ki te kokonga, ki te mamae ranei o to ringa.

Ka taea e to taakuta, o te kaiwhakaora whakaora ranei te awhina i a koe ki te ako mena kei te pai ki a koe tetahi o enei taputapu. Ka taea hoki e raatau te awhina i a koe ki te kowhiri i tetahi momo momo taputapu, tika ki te teitei tika, ka whakaatu ki a koe me pehea te whakamahi.

TuuruWiira, i te kuta ranei

Mena kaore e taea e koe te haere i te waahi me haere koe me te kore e ngenge, mena ka mataku koe ka hinga pea koe, akene kua tae ki te waa ki te whakangao i tetahi tuuru wira, i te motuka ranei. Ahakoa ka taea ano e koe te hikoi mo tawhiti, he pai ke me whai tuuru wira, motuka ranei mo nga wa e hiahia ana koe kia nui ake te whenua.

Mena he pai te mahi a te ringaringa me te ringaringa kaore koe e kite i te tino ngenge, ka pai pea ki a koe te tuuru wira. Ko nga tuuru wira a-ringa he iti rawa te waahanga ka iti ake te utu i nga motupaika i nga tuuru wira hiko ranei. Ka whakaratoa e ratau te whakangungu mo o ringaringa.

Mena he uaua ki a koe te akiaki i a koe ano i runga i te tuuru tuuru, ka tohu pea to taakuta, ki to kaiwhakawai whakaora ranei, ki tetahi motuka motupaika, tuuru wira ranei. Ko nga wira motuhake me nga motuka e whakahaerehia ana e te puhiko ka taea hoki te hono atu ki nga tuuru wira a-ringa, i roto i te whirihoranga e mohiotia ana ko te turu-wira-whakaohooho-tuuru (PAPAW).

Ma to taakuta, ma te kaiwhakawhana whakaora ranei koe e awhina ki te ako ko tehea te rahi me te rahi o te tuuru wira, kuta ranei ka pai mo koe. Ka taea hoki e raatau te awhina i a koe ki te ako ki te whakamahi.

Te tangohanga

Mena kua he koe, kua hinga, kua uaua ranei te haereere, whakamohio atu ki to taakuta.

Ka tono pea koe ki a koe ki tetahi tohunga ka taea te arotake me te whakatika i o hiahia tautoko nekeneke. Ka akiaki koe ki a koe ki te whakamahi i tetahi taputapu tautoko nekeneke hei awhina i te ahuru, i te whakamarie, i te taumata ngohe hoki i roto i to ao.

Mena kua tohua e koe he taputapu tautoko nekeneke, whakamohio atu ki to taakuta, ki te kaiwhakawai whakaora ranei mena kei te kite koe i te pai o te uaua ranei ki te whakamahi. Ka whakatikatikahia pea e raatau te taputapu, ka akiaki ranei koe ki te whakamahi i tetahi atu taputapu. Ka rereke pea o hiahia tautoko i roto i te waa.