Whakamatau Whakamaa mo te Cystic Fibrosis

Toka Te Manawa

• He aha te whakamatautau werawera?
• Hei aha te whakamahi?
• He aha i hiahiatia ai e ahau he whakamatautau werawera?
• Ka ahatia i te wa e whakamatauria ana te werawera?
• Me mahi e au tetahi mea hei whakareri mo te whakamatautau?
• He raru pea mo te whakamatautau?
• He aha te tikanga o nga hua?
• He mea ano me mohio au mo te whakamatautau werawera?
• Tohutoro

He aha te whakamatautau werawera?

Ko te whakamātautau werawera e mehua ana i te rahi o te pūhaumāota, he wāhi o te tote, i te Whā werawera. Ka whakamahia hei tirotiro i te fibrosis cystic (CF). Ko nga taangata me te CF he nui te rahi o te pūhaumāota i roto i o ratou werawera.

Ko te CF he mate e mate ana i te hutia o te puku i roto i nga manawa me etahi atu okana.Ka kino te huha ka uaua te manawa. Ka mate pea ka pangia e te mate kino me te kore kai totika. He mate tuku iho te CF, ko te tikanga i tukuna mai i o maatua, i roto i nga ira.

Ko nga ira te waahanga o te DNA e kawe ana i nga korero hei tohu i o ahuatanga motuhake, penei i te teitei me te kara o te karu. Kei a Genes ano hoki etahi atu raru o te hauora. Ki te whai fibrosis cystic, me whiwhi koe i tetahi ira CF mai i to whaea me to papa. Mena kotahi noa te maatua o te ira, kaore koe e pangia e te mate.

Othertahi atu ingoa: te whakamātautau werawera werawera, te whakamātao werawera fibstis cystic, nga hiko electrolytes

Hei aha te whakamahi?

Whakamahia ai te whakamatautau werawera hei whakatau i te hiakai o te cystic.

He aha i hiahiatia ai e ahau he whakamatautau werawera?

Ka taea e te whakamatautau werawera te tirotiro i te cystic fibrosis (CF) ki nga taangata o nga taipakeke katoa, engari ko te tikanga ka mahia i runga i nga peepi. Akene he mate werawera pea to peepi mena ka whakamatautautia ia mo te CF i runga i te whakamatautau toto hou. I te United States, ka whakamatautauhia nga peepi hou mo nga momo ahuatanga tae atu ki te CF. Ko te nuinga o nga whakamatautau werawera ka mahia i te wa e rua ki te 4 wiki te pakeke o nga peepi.

Ko te tamaiti pakeke, pakeke ranei, kaore ano kia whakamatautauria mo te CF, me whakamatau i te werawera werawera cystic mena he mate to tetahi o te whanau, me / he tohu tohu ranei to CF. Kei roto i enei:

• Kiri kiri-tote
• Te maremare pinepine
• Nga mate mama e kitea ana, penei i te niumonia me te mate pukupuku
• Raru manawa
• Te ngoikore ki te whakanui i te taumaha, ahakoa te hiahia pai
• He hinuhinu, he tuuru nui
• I nga whanau hou, kaore he papa e hanga ana i muri tonu o te whanautanga

Ka ahatia i te wa e whakamatauria ana te werawera?

Me kohikohi e to kaiwhakaora hauora tetahi tauira o te werawera hei whakamatautau. Kotahi haora pea te roa o te tikanga whakahaere, ka whai ake nei pea:

• Ka tukuna e tetahi kaiwhakarato hauora te pilocarpine, he rongoa ka werawera, ki tetahi waahanga iti o te ringaringa.
• Ka tukuna e to kaiwhakarato he hiko ki tenei rohe.
• Ka tukuna he ngoikore ngoikore ma te hiko. Ma tenei au e ngoto ai te rongoa ki te kiri. Akene he iti nei te tangi, te mahana ranei.
• Whai muri i te tangohanga o te hiko, ka taapirihia e to kaiwhakarato tetahi pepa pepa taatari me te miihini ranei ki runga i te ringaringa ki te kohi i te werawera.
• Ka kohia te werawera mo te 30 meneti.
• Ko nga werawera i kohia ka tukuna atu ki tetahi taiwhanga hei whakamatautau.

Me mahi e au tetahi mea hei whakareri mo te whakamatautau?

Kaore koe e hiahia i etahi whakaritenga motuhake mo te whakamatautau werawera, engari me karo e koe te whakamahi i nga aihikimi kiri kiri ranei mo te kiri mo nga haora 24 i mua i te mahinga.

He raru pea mo te whakamatautau?

Kaore he morearea e mohiotia ana mo te whakamatautau werawera. He mamae pea to tamaiti, he koretake ranei i te hiko, engari kaua e mamae.

He aha te tikanga o nga hua?

Mena ka kitea he nui te kaha o te pūhaumāota, ka tupono pea ka whiwhi fibrosis cystic to tamaiti. Ka tono pea to kaiwhakarato hauora tetahi atu whakamatautau werawera me / etahi atu whakamatautau ranei hei whakau, hei whakakore ranei i te taatai. Mena he paatai ​​taau mo nga hua o to tamaiti, korero ki to kaiwhakarato hauora.

Ako atu mo nga whakamatautau taiwhanga, awhe tohutoro, me te maarama ki nga hua.

He mea ano me mohio au mo te whakamatautau werawera?

Ahakoa kaore he rongoa mo te cystic fibrosis (CF), kei konaa etahi maimoatanga hei awhina i te whakaheke i nga tohumate me te whakapai i te kounga o te ora. Mena i tohua to tamaiti me te CF, korero ki to kaiwhakarato hauora mo nga rautaki me nga maimoatanga hei awhina i te mate.

Tohutoro

1. American Lung Association [Ipurangi]. Chicago: American Lung Association; c2018. Te Taatari me te Maimoatanga i te Cystic Fibrosis [i whakahuahia i te 2018 Maehe 18]; [e 4 pea nga mata]. Wātea mai i: http://www.lung.org/lung-health-and-diseases/lung-disease-lookup/cystic-fibrosis/diagnosing-and-treating-cf.html
2. Cystic Fibrosis Foundation [Ipurangi]. Bethesda (MD): Cystic Fibrosis Foundation; Mo Cystic Fibrosis [whakahua i te 2018 Maehe 18]; [tata ki te 2 nga mata]. Wātea mai i: https://www.cff.org/What-is-CF/About-Cystic-Fibrosis
3. Cystic Fibrosis Foundation [Ipurangi]. Bethesda (MD): Cystic Fibrosis Foundation; Whakamatau Tere (cited 2018 Mar 18]; [tata ki te 3 nga mata]. Wātea mai i: https://www.cff.org/What-is-CF/Testing/Sweat-Test
4. Hinkle J, Cheever K. Brunner & Suddarth's Handbook of Laboratory and Diagnostic Test. 2nd Ed, Rama. Philadelphia: Wolters Kluwer Hauora, Lippincott Williams & Wilkins; c2014. Whakamatau Whakamatau; wh. 473-74.
5. Johns Hopkins Medicine [Ipurangi]. Baltimore: Te Whare Wananga o Johns Hopkins; Whare Pukapuka Hauora: Cystic Fibrosis [whakahua i te 2018 Maehe 18]; [tata ki te 3 nga mata]. Wātea mai i: https://www.hopkinsmedicine.org/healthlibrary/conditions/adult/respiratory_disorder/cystic_fibrosis_85,p01306
6. Nga Whakamatautau Reipa Aipurangi [Ipurangi]. Washington D.C .: American Association mo te Haumanu Haumanu; c2001–2018. Cystic Fibrosis [whakahoutia 2017 Oketopa 10; whakahuahia 2018 Maehe 18]; [tata ki te 2 nga mata]. Wātea mai i: https://labtestsonline.org/conditions/cystic-fibrosis
7. Nga Whakamatautau Reipa Aipurangi [Ipurangi]. Washington D.C .: American Association mo te Haumanu Haumanu; c2001–2018. Tirohanga Hou [whanau 2018 Mar 18; whakahuahia 2018 Maehe 18]; [tata ki te 2 nga mata]. E waatea mai i: https://labtestsonline.org/screenings/ whanau hou
8. Nga Whakamatautau Reipa Aipurangi [Ipurangi]. Washington D.C .: American Association mo te Haumanu Haumanu; c2001–2018. Te Whakamatautau Kauhau Koura [whakahoutia i te tau 2018 Mar 18; whakahuahia 2018 Maehe 18]; [tata ki te 2 nga mata]. Wātea mai i: https://labtestsonline.org/tests/sweat-chloride-test
9. Merck Manual Kaihoko Putanga [Ipurangi]. Kenilworth (NJ): Merck & Co. Inc.; c2018. Cystic Fibrosis (CF) [whakahua i te 2018 Maehe 18]; [tata ki te 2 nga mata]. Wātea mai i: https://www.merckmanuals.com/home/ tamariki-s-health-issues/cystic-fibrosis-cf/cystic-fibrosis-cf
10. National Heart, Lung, and Blood Institute [Ipurangi]. Bethesda (MD): Te Tari Hauora me nga Ratonga Tangata a U.S. Cystic Fibrosis [whakahua i te 2018 Maehe 18]; [tata ki te 3 nga mata]. Wātea mai i: https://www.nhlbi.nih.gov/health-topics/cystic-fibrosis
11. Whare Wananga o Rochester Medical Center [Ipurangi]. Rochester (NY): Whare Wananga o Rochester Medical Center; c2018. Encyclopedia Hauora: Cystic Fibrosis Sweat Test [cited 2018 Mar 18]; [tata ki te 2 nga mata]. Wātea mai i: https://www.urmc.rochester.edu/encyclopedia/content.aspx?contenttypeid=167&contentid;=cystic_fibrosis_sweat
12. Hauora UW [Ipurangi]. Madison (WI): Te Whare Waananga o Wisconsin Whare Hauora me te Mana Haumanu; c2018. He Korero Hauora: He Tika Mo Te Hauora: Ko te Whakamatau Haapehu Pediatric [whakahoutia 2017 Mei 11; whakahuahia 2018 Maehe 18]; [tata ki te 3 nga mata]. Wātea mai i: https://www.uwhealth.org/healthfacts/parenting/5634.html
13. Hauora UW: Te Hohipera Tamariki Whanau Amerikana [Ipurangi]. Madison (WI): Te Whare Waananga o Wisconsin Whare Hauora me te Mana Haumanu; c2018. Hauora Tamariki: Cystic Fibrosis [whakahua i te 2018 Maehe 18]; [tata ki te 5 o nga mata]. Wātea mai i: https://www.uwhealthkids.org/kidshealth/kids/kids-health-problems/heart-lungs/cystic-fibrosis/22267.html
14. Hauora UW: Te Hohipera Tamariki Whanau Amerikana [Ipurangi]. Madison (WI): Te Whare Waananga o Wisconsin Whare Hauora me te Mana Haumanu; c2018. Hauora Tamariki: Cystic Fibrosis (CF) Whakamatau Haamaru Korooreti [whakahua i te 2018 Mar 18]; [tata ki te 5 o nga mata]. Wātea mai i: https://www.uwhealthkids.org/kidshealth/father/general-health/sick-kids/cystic-fibrosis-(cf)-chloride-sweat-test/24942.html

Ko nga korero kei tenei papaanga kaua e whakamahia hei whakakapi mo te tiaki ngaio ngaio, tohutohu ranei. Whakapa atu ki te kaiwhakarato hauora mena he paatai ​​taau mo to hauora.